|Eat Wings, Raise Funds... “Blessings for Brody” fundraiser to be held in Clarksville on Sunday|
|Written by Administrator|
|Wednesday, 14 May 2014 08:05|
A “Blessings for Brody” fundraiser will be held Sunday, May 18 at Buffalo Wild Wings in Clarksville.From open to close, 10 percent of your order will be donated to Brody. Just make sure to tell your server you are there for Brody Curtis.
Brody is the son of Charlestown High School math teacher, Heather Curtis. He was born on May 24, 2011 with a very rare, serious, and life threatening skin condition called Recessive Dystrophic Epidermolysis Bullosa, or just EB for short. Brody is missing the protein in his skin that holds it together. When he was born, Brody was missing skin on his arms, hands, legs and feet. The slightest amount of friction against his skin causes it to either form painful blisters or come off altogether.
Children born with EB are called “Butterfly Children” because their skin is as fragile as butterfly wings. Because of this, Brody must be wrapped from the neck down in bandages to help protect his skin from wounds and infections.
Many doctor’s appointments are required for Brody at Cincinnati Children’s Hospital. Brody also must take many medications. These things along with the bandage materials he needs are all very expensive.
At this time, there is no cure for EB.